DUNEDIN â England Miano greeted every woman who walked into the Escape Root Juicery with open arms, wrapping each in a warm hug.
Some of the faces she had seen only on Facebook. Others, fellow parents, sheâd known for some time.
Miano, 40, was hosting a meetup for people like her who challenge traditional health norms, like vaccinating their kids.
A mother of three who lives and works in north Pinellas County, Miano chose not to vaccinate her youngest after dealing with developmental issues with her second child. She believes vaccinations are the reason her son, Davis, has autism.
At the juicery, she and other Tampa Bay area moms gathered around plush chairs and colorful couches, sharing stories and self-care tips over lattes, veggie smoothies and organic champagne. Among the topics: CBD oil, yoga, whole foods and activated charcoal.
Miano and her guests are part of a small but increasingly vocal slice of the U.S. population who distrust doctors and federal health agencies, and who often base their positions on misinformation from fringe sources.
The medical community has sounded alarms. But so too have tech companies like Amazon and Instagram, which are trying to keep false information from spreading on their platforms.
Miano sees this resistance and works to push past it.
âBefore Facebook started censoring so much, itâs where we shared a lot of facts and information,â she says. âNow our posts get deleted all the time. Itâs so time-consuming to do the research. Itâs not easy. But they donât want it to be shared.â
At the same time, vaccine-preventable diseases are mounting a comeback.
The Centers for Disease Control and Prevention is reporting the largest number of measles cases nationally in 25 years. New York, Washington and Texas are seeing outbreaks.
Florida investigated 15 measles cases in 2018, up from the previous five years, when fewer than 10 cases was the norm.
Pinellas County reported three cases in unvaccinated adults last year â the first the county has seen in 20 years. And last month, researchers identified Hillsborough as the 17th most at-risk county in the nation for a measles outbreak.
Some doctors fear theyâll never be able to convince people like Miano and her friends that vaccines are safe and effective.
The mindset is similar to that of Joshua McAdams and Taylor Bland-Ball, the Tampa couple who recently ended chemotherapy for their 3-year-old son, Noah, in favor of alternative remedies, only to have a Hillsborough County judge order last month that the treatment resume.
âItâs hard to compete with these personal stories that people share on social media, and what parents see in front of their own eyes with their own children,â said Dr. Rebecca Plant, a pediatrician at Tampa General Hospital and an assistant professor with USF Health. âThe latter is going to carry a lot heavier of a weight in their own hearts and minds than if I can sit there and spout all the numbers and recent publications.â
The conversation at Mianoâs meetup turns to all the backlash they get, not only from doctors, but from neighbors and Facebook friends as well.
âI make suggestions that I think can help their children, who just look so sickly all the time, and they are so defensive,â one woman says. âI wish them no harm. I just want to help them.â
Another compares the reaction to how Nazis treated Jews: âWeâre the most hated people in America right now.â
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On a weekday afternoon, Mianoâs son was preparing to spend the evening at a friendâs house. Ellie, 8, danced around the living room with her dog, Blue, an Australian shepherd. And Taylor, 15, nursed a sunburn she got from a field trip to a blueberry farm, still wearing her T-shirt and gym shorts from volleyball practice.
âCome eat some pineapple; itâll help with your cough,â Miano said to Ellie, who sat at the granite kitchen counter, next to a salt lamp. Essential oils spouted into the air from a diffuser not far away.
Ellie ate a few handfuls before announcing: âIâm going to meditate in my room for 30 minutesâ and trotted off.
âOK baby,â said Miano, who prepared a meal for Blue. Into a tin bowl she mashed a slab of raw meat, some seaweed flakes and a few green-speckled vitamins. On top, she cracked a raw egg, leaving in the shell pieces before sliding it onto the floor.
A kitchen drawer next to the utensils was full of organic ingredients: Packets of a mushroom-based alternative to coffee. Vials of essential oils, CBD oil and colloidal silver, a product marketed as a nutritional supplement but one the medical community has labeled as unproven and possibly harmful.
Ellie was âwild schooledâ until she turned 8 â essentially home-schooled by her mother and a cohort of other women with similar views and practices. Instead of learning from a desk indoors, she spent most of her time in parks or the woods near their home in the well-manicured sprawl of North Pinellas.
Miano is strict about her childrenâs diet. At birthday parties, sheâll bring her own baked goods so Ellie can have a cupcake when it comes time to sing and cut the cake. It will be grain-free and wonât have processed sugar.
Because of her diet, based on raw, organic foods that incorporate some Paleo guidelines, Ellie spends time at home when her new class goes on field trips. âI just canât control what they eat,â Miano explains.
Maintaining her childrenâs diets is also difficult with other family members, like Mianoâs ex-husband, the father of her two older children, who doesnât share the same beliefs or lifestyle choices, she says.
It wasnât always like this.
Thirteen years ago, Miano gave birth to Davis, who was healthy, she said, until it came time for routine vaccinations, which were administered on a normal schedule through his infant years. Typically the first round occurs with several shots at birth to 3 months, then more at 18 months.
Davis was never diagnosed as autistic by a physician, but being his mother, Miano said she can tell something is wrong. He is smart and does well in school. But itâs hard for him to make eye contact when speaking, and he struggles to make friends and interact with others.
It would have been easier if heâd contracted measles, she said.
There is no scientific link between vaccinations and autism. Multiple studies have addressed the issue, including nine studies since 2003 that were funded or conducted by the Centers for Disease Control and Prevention.
They found no connection between autism and a preservative called thimerosal often used in vaccines, and no connection between autism and the measles, mumps, and rubella vaccine given to children in the U.S.
Miano says she has read the studies and doesnât believe them. She said vaccines contain aborted fetal cells and suggests they are linked to many people being transgender.
Matt Woodruff, a postdoctoral research fellow with the Vaccine Research Center at Emory University, said itâs important to understand where parents like Miano are coming from.
âItâs a sad fact that the vaccine schedule stretches from two months to ages 2, 3 and 4. Thatâs the same timeline that kids develop and start to display autism,â he said.
âYouâre not going to convince that parent that it didnât come from vaccines.â
Miano says there are alternative ways to keep her children safe. For one, she says, she can determine their immune protection using lab tests that track antibodies in the blood.
While Miano and her children have health insurance through her husbandâs company, she said they donât use it. Itâs been years since any of her children have seen a pediatrician. For wellness exams required for school, she takes her kids to a chiropractor. She said she would take them to the hospital only in a life or death emergency.
Ellie is one of nearly 25,000 students in Florida with a religious exemption filed with the state health department, waiving the need for immunizations.
Davis is â80 percent thereâ or cured, as Miano sees it, from autism. She said sheâs been managing his diet and using holistic treatments, to âreverseâ the damage done by vaccines.
One is âBodyTalk,â an alternative health practice focused on “quantum physics” which combines yoga, acupuncture, kinesiology and other methods, based on a book by John Veltheim. In addition, Miano said, sheâs spent a lot of time âdetoxingâ her son, using electromagnetic therapy and the occasional fecal matter transplant to boost his microbiome and gut health. She cites the gutâs strong connection to the brain.
She says she doesnât judge parents who choose to vaccinate their children or who struggle to feed them a healthy diet.
âI feel for people who have to work, and put their kids in day care, and just feed them McDonaldâs because theyâre exhausted at the end of the day,â she said. âI just encourage everybody to do their own research. Thereâs so much to learn out there. And you donât have to neglect and abuse your children with McDonaldâs.â
She added: âThey must have such strong feelings of guilt. I know I would.â
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Early in her career, Dr. Vivian Herrero would recite the same message to parents worried about vaccines.
âThe No. 1 thing weâre told is to tell everyone to get vaccinated, as if thereâs no other option,â she recalled.
Herrero, 39, worked at Community Health Centers of Pinellas before opening her own pediatrics office in downtown Dunedin. She said her outlook on vaccination is more nuanced now.
âWhat we should be doing is publishing more information about using vaccines and what the outcomes look like over time,â she said. âBut instead weâre told not to question it, which infuriates me because everything else weâre taught as doctors is to question everything, and to do the research.â
When Herrero opened her practice in 2015 she started seeing more families who opted to vaccinate on a âdelayedâ schedule or chose not to vaccinate at all. Many told her they had been kicked out of other doctorâs offices for that reason.
âItâs not my job to judge you,â Herrero said.
Word has spread about her leniency on the issue, so sheâs begun to draw patients from Bradenton, Wesley Chapel and Tampa.
âWithout a pediatrician these families are just going to see a chiropractor or go to an urgent care clinic, where they do not have a relationship with their doctor,â she said. âItâs my job to give parents the right information so they are prepared, and go into making this decision knowing what can happen.â
Her policy is to offer vaccinations at one year, and if parents want to delay, at 3 years old.
âI donât want to push people to do something that Iâll regret and theyâll regret. If youâve ever seen a baby have a seizure, thatâs terrifying,” she said, referring to the uncommon side effect of febrile seizures, which some children experience with vaccines. Most recover quickly and suffer no permanent harm.
Dr. Plant looks at it differently, influenced by her work at Tampa General Hospital.
Sheâs seen a child lose an arm to chicken pox and a leg to meningitis. Sheâs seen a baby stop breathing because of complications from whooping cough. And sheâs seen seizures.
She worries that soon sheâll add measles to that list, knowing that one or two out of every 1,000 people with the virus will die.
âIâm a mom myself,â said Plant, whose kids are 5, 4 and 2. âUntil the recent outbreak, we havenât seen this disease in many years, so that fear of what can happen is not there anymore. Weâre less afraid of the disease and more afraid of the vaccine.â
Plant said she is constantly having to weigh parentsâ valid concerns about medicines and treatments against a potential public health risk. She sees her biggest job as stopping the spread of misinformation.
âAll I can do is express what I know, which is that the numbers are real and that vaccines work,â she said.
She said she often sends parents home with information to read and encourages them to be skeptical of anything a doctor recommends for their child. âBut they should make sure theyâre looking at good information when they research, and not anecdotal social media stories, which arenât always true, reliable sources,â she said.
Parents in the United States who forgo vaccines would think differently if they ever saw a child die from measles, said Caryl Stern, president and CEO of the United Nations Childrenâs Fund, known as UNICEF.
In 2017, the organization vaccinated 78 million children against measles across the world. It estimates that one in five still misses out on essential vaccinations every year. About 1.5 million of them will die.
Stern has met women in Kenya who walked for days through the desert for a chance to get their children vaccinated. Sheâs held the hand of a 19-year-old mom as her infant died of tetanus, she said.
âJuxtapose that with whatâs happening here in the U.S., and I canât help but go, âWhat is wrong with us?ââ
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Miano grew up on an Alabama farm before studying sports medicine in college, which exposed her to the subject of nutrition. It quickly became her passion, but it wasnât until she began experiencing her own health issues that she felt the benefits of diet changes, yoga and meditation.
She wasnât diagnosed with any specific illness at the time, but complications would continue to affect her later in life.
âDiagnoses are good for a path to take forward, but itâs not great when people become stuck within that diagnosis,â she said. âI am empathetic for people who have disease, but I have no sympathy for people who let it hold them back.â
Miano said her breast implants caused her to develop cancer after having children. She was released from her OB-GYN physicianâs practice when she refused to get a mammogram and wouldnât comply with her doctorâs treatment plan. Instead, Miano said, she cured herself by using magnets and managing her diet.
While some medical studies suggest magnetic fields can shrink tumors, the treatment is not scientifically proven or FDA-approved to treat cancer.
Mianoâs interest in health led her to create a nutrition and alternative medicine business, Englandâs Primal Health, which she operates out of a medical office complex in Safety Harbor.
Dressed in a white doctorâs coat, barefoot and wearing a blousy T-shirt that reads âI saw that â Karma,â Miano prepared for a late-morning appointment recently.
A bodywork table sat near a bank of windows. Books on holistic health and nutrition lined another wall. Mianoâs certificates in holistic and Chinese medicine were displayed around the office.
Her first appointment of the day was Brittanie Pope, a friend and member of her meetup group. Pope, 28, said she lost 60 pounds after her pregnancy thanks to Mianoâs guidance on diet and various treatments.
Pope is currently on a âketogenic diet,â a high-fat, low-carb regimen. Occasionally sheâll follow an âalkaline dietâ under Mianoâs guidance, avoiding processed meats and eating mostly organic fruits and vegetables in line with an autoimmune protocol.
Pope removes her clothes and lies face down on the table for electromagnetic therapy. Miano turns the dial connected to a small black wand with two circular prongs at the end, warning âthis could feel a little stingy.â
She says the device helps increase circulation. She presses it into Popeâs legs to aid in smoothing out cellulite and to firm the skin there. Pope winces when the wand sends pulses into her thighs.
Next, Miano moves on to âmyofascial cupping,â a procedure often used on athletes. Suction is applied to the body through a cup, lifting the tissue. It is said to help with circulation, pain and injury management. Miano said it breaks up scar tissue.
At her home in the Citrus Park area, Pope runs a day care for families like hers and Mianoâs. Some of the children are on a âdelayedâ vaccination schedule. Others wonât get a shot at all. She said she does not fear the children will get measles.
Pope said she identifies as a âvaccine-injuredâ person. She had Scarlet fever three times in fourth grade and suffered from a poor immune system most of her life.
It helps, she said, to have people âon the same path,â for support.
âIâm going to support the people I trust, like England, over something like what my health insurance company tells me to do,â she said. âDoctors donât spend enough time with you to get to know you, or me to know them.â
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Across the country, pockets of people are banding together over a shared belief that vaccines are dangerous. Some, like Orthodox Jewish families in New York, have deeply rooted cultural beliefs that stem from past abuse. But that’s not necessarily the case with every group.
âOnce you become part of a community that is close-knit like that, those become your reference points,â said Elisa Sobo, a professor of anthropology at San Diego University. âEverything you say or experience becomes reinforced by this group, and your connections to the outside world just arenât there anymore. Thereâs no reality check. âŚ And then the rates of anti-vaccination keep going up and up.â
She added that history plays a role in where we are today â from the Nazi doctors who experimented on Jewish prisoners, to the Tuskegee Study that failed to treat black men adequately for syphilis, to the way health care, and its cost, has evolved in the U.S.
Doctors have gone from spending little time with their patients to having âreal, trueâ conversations where they listen and work to combat misinformation, Sobo said.
But it doesnât always work.
âIn this current climate, people donât know who to trust,â she said. âMoms are going online and finding information for themselves.â
What concerns her more, she said, is regaining the trust of people who have been labeled âanti-vaxxers,â and are pushed âinto a corner with this sense of identity.â
Woodruff, the Emory University research fellow, said the scientific community deserves some of the blame.
âWeâve been abhorrently quiet for far too long,â he said. âWeâre not good at communicating, and thatâs a problem when the group where the expertise lies is not vocal.â
The only way forward, he said, is to continue to perform large scientific studies, make every effort to share the results and implement effective laws against not vaccinating.
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At the Escape Root Juicery, women clap for a mom who says she was injured by vaccines as a child. She tells the group sheâs âon the spectrum.â She describes the battles she faced with childhood seizures, trouble maintaining eye contact, managing loud noises and rooms with lots of people, all of which cause her stress. She didnât want that for her infant son.
The meetup group began as a book club for mothers in north Pinellas County. They got together to talk about their kids and the lifestyle they lead, often sharing diet and health tips.
Miano created a private Facebook group for them to share resources, and over time it grew to a couple hundred members.
Now that her children are older, she uses the group to connect with others who often feel at war with their neighbors, other parents from school and even family members, because of their decision to not vaccinate.
Miano also joined another growing group called âWarrior Moms,â which has a national presence and lobbies to loosen vaccination requirements. Several members spoke in Tallahassee during this yearâs legislative session to oppose HB 213, a bill that creates a central immunization registry to track whether students are vaccinated. The measure passed and goes into effect in 2021.
Many in the Warrior Moms group follow Dr. Susan Cornelia Franz, an Orlando pediatrician whose interviews and talks on YouTube have attracted an international following.
Much like the Clearwater doctor, Herrero, Franz began her medical career insisting patients be vaccinated on time. But the longer she practiced, the more she began to see health conditions, including autism, that she said were reactions to vaccines.â
âWhen people say the same thing over and over you canât just ignore it,â Franz said in an interview at her office.
She said she prescribes antibiotics and will administer vaccines when requested, but she couples her traditional medical degree with homeopathy treatments.
Miano is a fan. Franz is âjust amazing,â she says.
As for the Warrior Moms, Miano says, they are parents âwho wonât accept the fate of their injured child, and who are fighting back for their kids and others who don’t have an advocate.â
Itâs there where she met many of the people she now considers her best friends. Through them, she first saw the controversial documentary Vaxxed and helped bring it to Tampa Bay for a screening in December.
She says they all get together to show each other support and keep up their fight. No matter the opposition from federal agencies, or school systems, or online platforms.
âYou cannot dismiss a parentâs observation and gut feeling,â Franz said. âEven when she doesnât have any facts, and she just knows it. You donât have to be a mother to understand that she will not back down. Nor should she.â
Contact Justine Griffin at [emailÂ protected] or (727) 893-8467. Follow @SunBizGriffin.
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More on the vaccination issue:
How did we get here?
The measles vaccine was introduced in the U.S. in 1963, when the nation saw 4 million measles cases with 48,000 hospitalizations and 500 deaths ever year. Measles was also a leading cause of death for children around the world.
By 2000, the Centers for Disease Control and Prevention declared measles âeliminated.â But the number of cases spiked to several hundred in 2014 and 2018, and stands at more than 940 so far this year in the U.S. The World Health Organization is reporting a 300 percent rise in measles in the first three months of the year in countries around the globe.
The number of religious exemptions, allowing children entering public schools to be excused from routine immunizations, rose 375 percent in Florida from 2011 to 2018.
Why is there so much emphasis on measles?
Though not nearly as deadly as other diseases, measles is one of the most contagious illnesses known to humans. It spreads when an infected person breathes, coughs or sneezes, but can remain in the air for hours after that person leaves the area.
Many times people spread the virus before they know theyâre sick, said Dr. Rebecca Plant, a pediatrician at Tampa General Hospital and an assistant professor with USF Health. âThatâs how hundreds of cases have popped up in just the first four months of 2019.â
Should adults who were vaccinated as children get another booster shot?
The Centers For Disease Control and Prevention recommends that adults born after 1957 get another dose of measles vaccine, unless medical records can show they had two doses already. Anyone born before then is mostly considered immune because the disease was so prevalent at that time. A simple blood test can reveal a person’s immunity by checking antibody levels. Adults at risk for measles transmission â college-age students, health care workers and international travelers â should get two doses of the vaccine separated by at least 28 days.
Are there elements in vaccines that are concerning?
The measles, mumps, and rubella vaccine, known as MMR, is given in two doses, when a child is 12 to 15 months old and again at 4 to 6 years.
The measles vaccine specifically contains a live but weakened form of the natural virus. It’s “grown” in cells from chick embryos, which limits its ability to grow in human cells. Because of this, the virus struggles to grow when injected into a person in the form of a vaccine. Some people develop a soreness at the local area of the shot, a low-grade fever and a mild rash.
The MMR vaccine has never been fatal. It contains a low amount of aluminum, which is used to boost the immune response of the patient. Humans are generally exposed to it every day in their diets, as aluminum is the third most abundant element in the earthâs crust, after oxygen and silicon.
The rubella vaccine is one of several that are grown in fetal embryo fibroblast cells. Researchers have grown these cells over decades from the original source obtained from the elective termination of two pregnancies in the 1960s. Residual formaldehyde is also a common ingredient in some vaccines, though not MMR. While it has been proven to cause cancer, the levels are too low to be detected from vaccinations.
Is âherd immunityâ real?
Herd immunity occurs when enough people in a community are vaccinated against a disease that it stems the spread of germs from person to person. While the concept has been hotly debated online, Matt Woodruff, a postdoctoral research fellow with the Vaccine Research Center at Emory University, said the science behind it is âabsolutely a real thing.â
With any infectious disease, an epidemiologist uses a metric to determine just how contagious a particle is, to determine the overall health risk. âIf you drop a person with the flu into a greater population,â Woodruff said, âyou can determine that this person will likely infect 1.5 people.â Those people will infect others, and the infection grows.
For measles, that number would be 12 people.
âThat means if youâre in an airplane, and one person has measles, 95 percent of the people on that flight will get measles,â Woodruff said. âItâs not as deadly as ebola, but it can have serious consequences and it spreads so quickly, which means the chances of hitting someone with those extreme reactions is quite high.â
Woodruff said scientists can calculate how many people need to be vaccinated in a community in order for a contagious disease to stall and not cause a major outbreak. Thatâs the number local health departments often tout as their threshold for herd immunity. âWith measles, we need somewhere between 94 to 96 percent vaccination to not expect it to spiral out of control,â Woodruff said.
Where can I find reliable information about vaccines?
The Centers for Disease Control and Prevention tracks outbreaks across the country and offers general prevention and health information. Dr. Plant at Tampa General Hospital recommends that parents with children who are eligible for vaccines find more information at the Vaccine Education Center website, operated by the Childrenâs Hospital of Philadelphia.
â Justine Griffin